I just ran across your blog & wanted to tell you how sorry I am that your son has anen. My son Logan also had anen. This is so hard & you been been thru so much already...Just not fair at all. I also wanted to let you know I moderate a support group for mothers of anencephalic babies & here is the link if you are interested in talking with & getting support from other mothers in your same place. http://health.groups.yahoo.com/group/Anencephaly_Support/
Hi Sara. I am one of Jessica's cousins on Mollly's side of the family. I have read your blog and I can't stop thinking about and praying for you! My heart goes out to you!
I am also a cousin of Jessica's and will pray for you, William, and your family. God Bless You for being so strong for William and Kayla. You truly are an amazing mother!
I created this blog for my unborn son, William Jason, who was diagnosed with Anencephaly on December 19th, 2008. He was stillborn on March 11th, 2009 at 32-1/2 weeks. Almost exactly 7 months after his Daddy passed away. They are both in Heaven watching over us now. We love & miss them both so very much. Thank you to everyone's thoughts and prayers.
Anencephaly is a neural tube defect (a disorder involving incomplete development of the brain, spinal cord, and/or their protective coverings). The neural tube is a narrow sheath that folds and closes between the 3rd and 4th weeks of pregnancy to form the brain and spinal cord of the embryo. Anencephaly occurs when the "cephalic" or head end of the neural tube fails to close, resulting in the absence of a major portion of the brain, skull, and scalp. Infants with this disorder are born without both a forebrain (the front part of the brain) and a cerebrum (the thinking and coordinating area of the brain). The remaining brain tissue is often exposed--not covered by bone or skin. The infant is usually blind, deaf, unconscious, and unable to feel pain. Although some individuals with anencephaly may be born with a rudimentary brain stem, the lack of a functioning cerebrum permanently rules out the possibility of ever gaining consciousness. Reflex actions such as respiration (breathing) and responses to sound or touch may occur. The cause of anencephaly is unknown. There is no cure or standard treatment for anencephaly. The prognosis for individuals with anencephaly is extremely poor. If the infant is not stillborn, then he or she will usually die within a few hours or days after birth.
I just ran across your blog & wanted to tell you how sorry I am that your son has anen. My son Logan also had anen. This is so hard & you been been thru so much already...Just not fair at all. I also wanted to let you know I moderate a support group for mothers of anencephalic babies & here is the link if you are interested in talking with & getting support from other mothers in your same place.
ReplyDeletehttp://health.groups.yahoo.com/group/Anencephaly_Support/
((hugs))
Nicole Mommy to Logan Quinn.
Hi Sara. I am one of Jessica's cousins on Mollly's side of the family. I have read your blog and I can't stop thinking about and praying for you! My heart goes out to you!
ReplyDeleteI am also a cousin of Jessica's and will pray for you, William, and your family. God Bless You for being so strong for William and Kayla. You truly are an amazing mother!
ReplyDelete