So my little man is famous. Sandy Allen, William's photographer, updated her website and put a picture of William on her page about NILMDTS. It's so beautiful and the saying is perfect for us. Check out her website and my William's picture. :)
My family lives in Virginia where they have gotten hit with some snow here lately. I don't think the entire time I lived in VA did I see this much snow. :) I am glad I'm in Texas right now because I really hate the cold and the snow!
I decided to ask my sister to write William's name in the snow. She posted pics on my facebook and she also wrote Jason's name and my Memaw's name in the snow. I think they turned out great. THANKS NIKKI!
We are coming up on William's 11 month birthday...to me that's so insane. The last couple of days I have been replaying some things in my head. Between Jason's accident and William's birth my head has been spinning. I went through the intersection of Jason's accident today and then the u-turn where the van I was in was when they told me he had passed. I just flashed back to sitting in that van hearing the news. I did get to see his cross still standing strong which is great because I figured we'd have to go repair it with all the issues we had putting it up.
I am already planning William's bday party. I am going to invite family & friends over to help put his scrapbook together. I've had his scrapbook for a while, but just have never gotten around to starting it. I still need to print all the pictures I have. The other day I bought a photo album from Kohl's that is blue and says "Angel" with stars on it. I thought it was perfect. I am looking forward to starting his scrapbook, it's going to be so beautiful. Afterwards we will definitely have a balloon release.
Hope to post more soon...if not, definitely for his birthday.
I created this blog for my unborn son, William Jason, who was diagnosed with Anencephaly on December 19th, 2008. He was stillborn on March 11th, 2009 at 32-1/2 weeks. Almost exactly 7 months after his Daddy passed away. They are both in Heaven watching over us now. We love & miss them both so very much. Thank you to everyone's thoughts and prayers.
Anencephaly is a neural tube defect (a disorder involving incomplete development of the brain, spinal cord, and/or their protective coverings). The neural tube is a narrow sheath that folds and closes between the 3rd and 4th weeks of pregnancy to form the brain and spinal cord of the embryo. Anencephaly occurs when the "cephalic" or head end of the neural tube fails to close, resulting in the absence of a major portion of the brain, skull, and scalp. Infants with this disorder are born without both a forebrain (the front part of the brain) and a cerebrum (the thinking and coordinating area of the brain). The remaining brain tissue is often exposed--not covered by bone or skin. The infant is usually blind, deaf, unconscious, and unable to feel pain. Although some individuals with anencephaly may be born with a rudimentary brain stem, the lack of a functioning cerebrum permanently rules out the possibility of ever gaining consciousness. Reflex actions such as respiration (breathing) and responses to sound or touch may occur. The cause of anencephaly is unknown. There is no cure or standard treatment for anencephaly. The prognosis for individuals with anencephaly is extremely poor. If the infant is not stillborn, then he or she will usually die within a few hours or days after birth.