December 19th was the day that I finally found out who is living in my belly. Is it William Jason, the baby boy my husband & I always wanted. Or is it Marisa Ariel, the little girl that we just knew we'd have. Well there we were Samantha, Jason, Kayla & I in the room with the sonographer waiting to find out. And bam right on the screen was Lil Willy J showing us that he was definitely a boy!! Too funny! We couldn't believe it, well I couldn't anyways. I just started to cry, I was so happy. Poor Kayla wanted a little sister, she was too cute. During the sonogram the sonographer told us that there was something wrong with the pregnancy. He said "There is something significantly wrong with the baby's head". He didn't go into detail because he wanted my doctor to go over everything with me. So Samantha & I waited FOREVER for the doctor to see us. She told us that he has "anencephaly" which is a defect where the back of the brain & skull do not form and that he will not survive birth. There's a possibility of him being still born, maybe being alive for a few minutes up to 10 days. She setup an appointment for me on the 22nd to get a second opinion. Samantha could not get off work to go with me, so Jason went with me. I was already prepared to hear the same thing as before, so I was pretty much just numb the whole time he was talking to me. I left there just as confused as before. Still in disbelief of everything that I've had to go through already. But now I had to decide whether I would medically terminate the pregnancy now or continue on to full term. How can anyone make this decision???
I created this blog for my unborn son, William Jason, who was diagnosed with Anencephaly on December 19th, 2008. He was stillborn on March 11th, 2009 at 32-1/2 weeks. Almost exactly 7 months after his Daddy passed away. They are both in Heaven watching over us now. We love & miss them both so very much. Thank you to everyone's thoughts and prayers.
Anencephaly is a neural tube defect (a disorder involving incomplete development of the brain, spinal cord, and/or their protective coverings). The neural tube is a narrow sheath that folds and closes between the 3rd and 4th weeks of pregnancy to form the brain and spinal cord of the embryo. Anencephaly occurs when the "cephalic" or head end of the neural tube fails to close, resulting in the absence of a major portion of the brain, skull, and scalp. Infants with this disorder are born without both a forebrain (the front part of the brain) and a cerebrum (the thinking and coordinating area of the brain). The remaining brain tissue is often exposed--not covered by bone or skin. The infant is usually blind, deaf, unconscious, and unable to feel pain. Although some individuals with anencephaly may be born with a rudimentary brain stem, the lack of a functioning cerebrum permanently rules out the possibility of ever gaining consciousness. Reflex actions such as respiration (breathing) and responses to sound or touch may occur. The cause of anencephaly is unknown. There is no cure or standard treatment for anencephaly. The prognosis for individuals with anencephaly is extremely poor. If the infant is not stillborn, then he or she will usually die within a few hours or days after birth.