Today is 11 weeks since William was born into Heaven. Still can't believe it. I miss my little man so much. And wishing Kayla had the chance to be the best big sister ever. Seeing her see other babies is so amazing and hurts me so much cuz I know how AWESOME she'd be with her baby William. I never thought I'd feel sad or mad that other women had babies and I didn't, I think it hurts more because Kayla won't get that experience even though she is a a big sister. She is so amazing and I love how she hasn't forgotten her Daddy or baby brother. Not that I think she ever will but she's so young so I wasn't sure if she'd remember. But she loves talking about them and has even seen them too. I am glad they come to visit her. I haven't had that experience yet...I don't think I am ready and my boys know that. One day I know it'll be amazing.
I created this blog for my unborn son, William Jason, who was diagnosed with Anencephaly on December 19th, 2008. He was stillborn on March 11th, 2009 at 32-1/2 weeks. Almost exactly 7 months after his Daddy passed away. They are both in Heaven watching over us now. We love & miss them both so very much. Thank you to everyone's thoughts and prayers.
Anencephaly is a neural tube defect (a disorder involving incomplete development of the brain, spinal cord, and/or their protective coverings). The neural tube is a narrow sheath that folds and closes between the 3rd and 4th weeks of pregnancy to form the brain and spinal cord of the embryo. Anencephaly occurs when the "cephalic" or head end of the neural tube fails to close, resulting in the absence of a major portion of the brain, skull, and scalp. Infants with this disorder are born without both a forebrain (the front part of the brain) and a cerebrum (the thinking and coordinating area of the brain). The remaining brain tissue is often exposed--not covered by bone or skin. The infant is usually blind, deaf, unconscious, and unable to feel pain. Although some individuals with anencephaly may be born with a rudimentary brain stem, the lack of a functioning cerebrum permanently rules out the possibility of ever gaining consciousness. Reflex actions such as respiration (breathing) and responses to sound or touch may occur. The cause of anencephaly is unknown. There is no cure or standard treatment for anencephaly. The prognosis for individuals with anencephaly is extremely poor. If the infant is not stillborn, then he or she will usually die within a few hours or days after birth.