So I finally bought Kayla a "big sister" shirt at Kohl's a couple of weeks ago (I believe it's the same one that Carleigh's big sister, Kyndra has). She wore it one day last week to daycare - she was super excited. Kayla fell asleep on the couch that night in the clothes she wore to daycare, so instead of waking her up to change into pjs, I just let her sleep in those clothes. Well the next day she did not want to take off the shirt. She said that she wanted to be a big sister. I told her that she was a big sister and that the shirt didn't change that. Today at lunch I went to Carter's store and found another big sister shirt - this one says "Big Sisters Rock". It is super cute - I would have taken a picture, but can't seem to find my camera right now. Kayla is excited to wear it tomorrow. I am sure she will not want to take it off tomorrow when we get ready for bed. Buying that shirt reminded me that I never posted videos of William & Kayla. She sang songs to him at the hospital. She's such a great BIG SISTER. Sorry to all that I am not better at posting things here. I will try to get better. :) UPDATE - so I guess I can't post videos just yet. The two videos I have are bigger than the max. that I can post. I will need to figure out how to get them up. Stay tuned...sorry.
I created this blog for my unborn son, William Jason, who was diagnosed with Anencephaly on December 19th, 2008. He was stillborn on March 11th, 2009 at 32-1/2 weeks. Almost exactly 7 months after his Daddy passed away. They are both in Heaven watching over us now. We love & miss them both so very much. Thank you to everyone's thoughts and prayers.
Anencephaly is a neural tube defect (a disorder involving incomplete development of the brain, spinal cord, and/or their protective coverings). The neural tube is a narrow sheath that folds and closes between the 3rd and 4th weeks of pregnancy to form the brain and spinal cord of the embryo. Anencephaly occurs when the "cephalic" or head end of the neural tube fails to close, resulting in the absence of a major portion of the brain, skull, and scalp. Infants with this disorder are born without both a forebrain (the front part of the brain) and a cerebrum (the thinking and coordinating area of the brain). The remaining brain tissue is often exposed--not covered by bone or skin. The infant is usually blind, deaf, unconscious, and unable to feel pain. Although some individuals with anencephaly may be born with a rudimentary brain stem, the lack of a functioning cerebrum permanently rules out the possibility of ever gaining consciousness. Reflex actions such as respiration (breathing) and responses to sound or touch may occur. The cause of anencephaly is unknown. There is no cure or standard treatment for anencephaly. The prognosis for individuals with anencephaly is extremely poor. If the infant is not stillborn, then he or she will usually die within a few hours or days after birth.