I just signed up for the March of Dimes walk in Austin on May 9th. I walked 2 years ago with Jason & Kayla with some people from work. I was waiting to sign up this year because it was right around my due date, so I wasn't sure if I'd be able to do it. Right now I'm just an individual walker, but I plan on creating a family team in memory of William. I would love to have a huge team, so if anyone would like to join please let me know. My personal email is email@example.com or you can just leave a comment on here. I will let everyone know the name of the team as soon as I figure that out. I believe you can just search for the team name on the March of Dimes website to join. Again thanks to everyone for everything.
I created this blog for my unborn son, William Jason, who was diagnosed with Anencephaly on December 19th, 2008. He was stillborn on March 11th, 2009 at 32-1/2 weeks. Almost exactly 7 months after his Daddy passed away. They are both in Heaven watching over us now. We love & miss them both so very much. Thank you to everyone's thoughts and prayers.
Anencephaly is a neural tube defect (a disorder involving incomplete development of the brain, spinal cord, and/or their protective coverings). The neural tube is a narrow sheath that folds and closes between the 3rd and 4th weeks of pregnancy to form the brain and spinal cord of the embryo. Anencephaly occurs when the "cephalic" or head end of the neural tube fails to close, resulting in the absence of a major portion of the brain, skull, and scalp. Infants with this disorder are born without both a forebrain (the front part of the brain) and a cerebrum (the thinking and coordinating area of the brain). The remaining brain tissue is often exposed--not covered by bone or skin. The infant is usually blind, deaf, unconscious, and unable to feel pain. Although some individuals with anencephaly may be born with a rudimentary brain stem, the lack of a functioning cerebrum permanently rules out the possibility of ever gaining consciousness. Reflex actions such as respiration (breathing) and responses to sound or touch may occur. The cause of anencephaly is unknown. There is no cure or standard treatment for anencephaly. The prognosis for individuals with anencephaly is extremely poor. If the infant is not stillborn, then he or she will usually die within a few hours or days after birth.