Baby William Jason Wendt: Preparing for the holidays...

Wednesday, November 25, 2009

Preparing for the holidays...

Wow, Thanksgiving is tomorrow. This will be the 1st year without both Jason & William. I have decided to just spend the day with Kayla instead of being around a bunch of family. Remembering how my birthday was I think it's probably a good idea. Who knows how many times I will break down tomorrow. Hopefully keeping busy will help a little. We will be going to see "A Christmas Carol" tomorrow. And then afterwards we'll start decorating for Christmas. The tree is already up, but I hope to actually put ornaments on it this year. Last year the tree was up all month without any ornaments - never really got in the mood to put them on there. I was able to find a matching stocking for William - I was so excited. Jason & I bought some 3 years ago that have chalkboards on them for our names and I didn't think they made them anymore or at least have them at Target still, but they did.

I really love Christmas time - especially getting to buy gifts for everyone I love. But this year is probably gonna be the hardest. I thought last year was pretty hard...1st year without Jason and found out right before that William had anencephaly. This year I won't have either here with me...I won't get to go shopping for the fun little toys for William to play with or see his face when he sees what Santa brought him. Or video tape the whole morning of him tearing open ALL of the gifts that Mommy & Daddy bought him which would probably be way too many. Or have his big sister, Kayla, help him open the gifts and have her buy her little brother Christmas gifts for the first time. Oh how much fun she would have. :(

I need to get through the rest of this year...can I do it? I wonder every day how I will do it. And hope that 2010 will be a better year. I can't believe I have survived the last 15 months - sometimes I don't even know how I have.

2 comments:

GodMommy - GodDaddy of Kayla and WilliamNovember 26, 2009 at 8:48 AM
Before we found out about William's condition, I was already thinking ahead of xmas. how "next year" er were going to have 3 adults, 4 children waking up to see if santa came. JAson shinning down on us... Now this year is here and 3 adult, 3 children and 2 angles. :( My eyes still look at all the fun things to buy my godson.
This year hurts, I agree with you 100%. Hold your daughter close these holidays, remember Godmommy and goddaddy. BFF's whatever you call us are right around the corner (well 45 min around the corner :) ) We love you
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HollyNovember 28, 2009 at 10:51 AM
These holidays will be difficult. I am hoping that 2010 will be a better year for us all.
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What is Anencephaly?

Anencephaly is a neural tube defect (a disorder involving incomplete development of the brain, spinal cord, and/or their protective coverings). The neural tube is a narrow sheath that folds and closes between the 3rd and 4th weeks of pregnancy to form the brain and spinal cord of the embryo. Anencephaly occurs when the "cephalic" or head end of the neural tube fails to close, resulting in the absence of a major portion of the brain, skull, and scalp. Infants with this disorder are born without both a forebrain (the front part of the brain) and a cerebrum (the thinking and coordinating area of the brain). The remaining brain tissue is often exposed--not covered by bone or skin. The infant is usually blind, deaf, unconscious, and unable to feel pain. Although some individuals with anencephaly may be born with a rudimentary brain stem, the lack of a functioning cerebrum permanently rules out the possibility of ever gaining consciousness. Reflex actions such as respiration (breathing) and responses to sound or touch may occur. The cause of anencephaly is unknown. There is no cure or standard treatment for anencephaly. The prognosis for individuals with anencephaly is extremely poor. If the infant is not stillborn, then he or she will usually die within a few hours or days after birth.