So I can already feel myself starting to break down. This week is NOT going to be a good week. Friday will be Jason & my 5 year wedding anniversary. Saturday will be 4 months since William was born. And then next Tuesday will be 11 months since Jason's accident - I really can't believe it's almost been a YEAR. I am feeling so alone right now. I miss my boys so much, I think about them all the time. We should all be together right now. Jason and I should be going on a hot air balloon ride on Friday like we planned 2 years ago. William should be learning to rollover like Kayla did at 4 months. Jason and I should be starting to make homemade baby food for our little handsome boy. Kayla should just be Kayla the sweetest little girl that would be so cute with her little brother. Y'all should see her with any other little baby boy that she sees. It's too cute and it just kills me EVERY time - I really don't know how I keep it together. Man, what am I going to do...
This blog was created for my baby boy William Jason. I found out that I was pregnant with him about 3 weeks after his daddy passed away in a motorcycle accident. Then in December 2008 I found out that he had anencephaly, a fatal birth defect. William was born into Heaven on March 11, 2009 - 7-1/2 weeks early. This blog is in memory of both my boys as I try to keep family and friends updated as to what's going on and how Kayla (William's big sister) & I are doing.
I created this blog for my unborn son, William Jason, who was diagnosed with Anencephaly on December 19th, 2008. He was stillborn on March 11th, 2009 at 32-1/2 weeks. Almost exactly 7 months after his Daddy passed away. They are both in Heaven watching over us now. We love & miss them both so very much. Thank you to everyone's thoughts and prayers.
Anencephaly is a neural tube defect (a disorder involving incomplete development of the brain, spinal cord, and/or their protective coverings). The neural tube is a narrow sheath that folds and closes between the 3rd and 4th weeks of pregnancy to form the brain and spinal cord of the embryo. Anencephaly occurs when the "cephalic" or head end of the neural tube fails to close, resulting in the absence of a major portion of the brain, skull, and scalp. Infants with this disorder are born without both a forebrain (the front part of the brain) and a cerebrum (the thinking and coordinating area of the brain). The remaining brain tissue is often exposed--not covered by bone or skin. The infant is usually blind, deaf, unconscious, and unable to feel pain. Although some individuals with anencephaly may be born with a rudimentary brain stem, the lack of a functioning cerebrum permanently rules out the possibility of ever gaining consciousness. Reflex actions such as respiration (breathing) and responses to sound or touch may occur. The cause of anencephaly is unknown. There is no cure or standard treatment for anencephaly. The prognosis for individuals with anencephaly is extremely poor. If the infant is not stillborn, then he or she will usually die within a few hours or days after birth.